Jesy Nelson’s mother has offered an emotional look at the singer’s home life with her twin daughters following their diagnosis with Spinal Muscular Atrophy Type 1.
Jesy’s girls, Ocean Jade and Story Monroe, were born prematurely last May and were later diagnosed with the rare genetic condition, which can severely weaken muscles and affect movement, breathing and swallowing.
In Jesy’s upcoming Amazon Prime Video documentary, Jesy Nelson: Life Changing, her mum Janice White shows cameras a spare bedroom filled with medical supplies and toys the twins are unable to use.
“This is actually quite organised but it is all their stuff they can’t use and all their medical stuff, their feeding tubes and stuff,” Janice says.
“But it upsets Jesy if she sees it downstairs, so we keep it up here.”
Janice then reveals a brand-new cuddly elephant rocking chair, explaining that many items bought for the girls were not suitable because their needs are so specific.
“It is all things we bought like toys, and nothing was suitable because everything has to be specialised because of their spines,” she says.
“I said, ‘you should donate them to the hospital and things, they need it’. Hopefully, someone else will get the benefit of them.”
The documentary follows Jesy’s campaign for SMA testing to be introduced for newborn babies across the UK.
The former Little Mix star recently celebrated Ocean and Story’s first birthday, sharing an emotional poem about parenting children with disabilities and describing her daughters as her “whole heart and soul.”
Jesy shares the twins with rapper Zion Foster. The pair later split after the girls’ diagnosis, but have remained close as they continue to co-parent.
