Jesy Nelson has revealed her baby twins are back in hospital undergoing further tests, just days after celebrating a major breakthrough in her campaign for newborn SMA screening.
The 34-year-old singer took to Instagram to share an emotional update, posting a tender photo of her nine-month-old daughters, Ocean and Story, lying side by side in a hospital bed at Great Ormond Street Hospital as doctors carried out examinations.
The twins, both dressed in matching yellow and pink babygrows, were seen with feeding tubes in their noses — a stark reminder of the daily reality they face. In a touching moment, Jesy described how Ocean appeared to watch closely as her sister was examined, writing that Ocean looked like she was thinking, “I see what you doing to my sister”.
Jesy first revealed in January that her daughters had been diagnosed with SMA Type 1, a rare and devastating muscle-wasting condition that means they may never be able to walk. Since then, she has dedicated herself to both caring for her girls and campaigning for change.
Her latest update comes shortly after what she called a “major milestone” — the NHS confirming plans to begin screening newborns for SMA from October 2026. While celebrating the progress, Jesy admitted her emotions are mixed, warning that the rollout will not yet reach every family.
She explained that the system risks becoming a postcode lottery, saying that if parents do not live in certain areas, their babies may not be tested. She stressed that this should never be the case, adding that all babies’ lives matter and that more work is needed to ensure equal access across England.
Despite the bittersweet nature of the announcement, Jesy expressed deep gratitude to fans who supported her petition, which reached over 100,000 signatures and is now set to be debated in Parliament. She said the achievement was down to their support and described herself as incredibly thankful for the love she has received.
Opening her video message, Jesy said she felt proud of how far the campaign has come, calling the upcoming screening rollout “absolutely incredible” and a huge moment for the SMA community after years of pushing for change.
Behind the public fight, however, the personal toll remains immense. Jesy has previously spoken about the emotional strain of caring for her daughters, admitting that some days feel overwhelmingly difficult while others are more manageable.
She described the daily medical routines as intense and heartbreaking, explaining that watching her babies cry during necessary procedures makes her feel like she is hurting them — even though she knows it is for their survival.
Speaking on a podcast, Jesy also shared the harsh reality of SMA, explaining that the condition causes muscles to weaken and deteriorate over time, eventually affecting breathing and swallowing. Without early treatment, it can be fatal before the age of two.
Still, despite the devastating prognosis, Jesy refuses to give up hope. She said she truly believes her daughters are strong enough to defy the odds, describing them as incredibly resilient and determined.
Even as they return to hospital once again, Jesy’s message remains clear — the fight is far from over, both for her daughters and for every family still waiting for change.
Jesy Nelson has revealed her baby twins are back in hospital undergoing further tests, just days after celebrating a major breakthrough in her campaign for newborn SMA screening.
The 34-year-old singer took to Instagram to share an emotional update, posting a tender photo of her nine-month-old daughters, Ocean and Story, lying side by side in a hospital bed at Great Ormond Street Hospital as doctors carried out examinations.
The twins, both dressed in matching yellow and pink babygrows, were seen with feeding tubes in their noses — a stark reminder of the daily reality they face. In a touching moment, Jesy described how Ocean appeared to watch closely as her sister was examined, writing that Ocean looked like she was thinking, “I see what you doing to my sister”.
Jesy first revealed in January that her daughters had been diagnosed with SMA Type 1, a rare and devastating muscle-wasting condition that means they may never be able to walk. Since then, she has dedicated herself to both caring for her girls and campaigning for change.
Her latest update comes shortly after what she called a “major milestone” — the NHS confirming plans to begin screening newborns for SMA from October 2026. While celebrating the progress, Jesy admitted her emotions are mixed, warning that the rollout will not yet reach every family.
She explained that the system risks becoming a postcode lottery, saying that if parents do not live in certain areas, their babies may not be tested. She stressed that this should never be the case, adding that all babies’ lives matter and that more work is needed to ensure equal access across England.
Despite the bittersweet nature of the announcement, Jesy expressed deep gratitude to fans who supported her petition, which reached over 100,000 signatures and is now set to be debated in Parliament. She said the achievement was down to their support and described herself as incredibly thankful for the love she has received.
Opening her video message, Jesy said she felt proud of how far the campaign has come, calling the upcoming screening rollout “absolutely incredible” and a huge moment for the SMA community after years of pushing for change.
Behind the public fight, however, the personal toll remains immense. Jesy has previously spoken about the emotional strain of caring for her daughters, admitting that some days feel overwhelmingly difficult while others are more manageable.
She described the daily medical routines as intense and heartbreaking, explaining that watching her babies cry during necessary procedures makes her feel like she is hurting them — even though she knows it is for their survival.
Speaking on a podcast, Jesy also shared the harsh reality of SMA, explaining that the condition causes muscles to weaken and deteriorate over time, eventually affecting breathing and swallowing. Without early treatment, it can be fatal before the age of two.
Still, despite the devastating prognosis, Jesy refuses to give up hope. She said she truly believes her daughters are strong enough to defy the odds, describing them as incredibly resilient and determined.
Even as they return to hospital once again, Jesy’s message remains clear — the fight is far from over, both for her daughters and for every family still waiting for change.
